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- ‘It’s like you’re in a war zone’news.com.au
- Heartbreaking plight of 'butterfly baby'NZ Herald
- To help a baby with a horrifying disease, her parents must hurt her – again and againMerced Sun-Star
- A baby girl. A baffling disease. And the only way to help her is to hurt her.Washington Post
- Mum Criticised By Strangers Who Mistake Toddler's Rare Skin Condition For Extreme SunburnThe Huffington Post (UK)
- OSaving Jonathan Pitre: 'Butterfly Boy' heading to U.S. for therapy that could change his lifeottawacitizen.com
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